About Funhouse Diary

Everyone has their story to tell. Some tell the story of their entire lives, while some focus on the one key moment in their life that changed everything.

Funhouse Diary is my story. It focuses on the one, single biggest event in my life so far. It will be written mainly from a hospital ward, while under the influence of drugs (albeit legal ones) and dealing with the side effects of the treatment.

No one can predict what will happen in a few months, but with God’s grace I will fight this and prevail.

  1. #1 by Brian Soto on January 16, 2011 - 12:40 am

    Hi Cyprian,

    We have never met so it is needless to say that we do not know each other. In short, I am a friend of Cossie’s from nyc.

    My brother was diagnosed with ALL over 20 years ago. He was 13 years old at the time and was given less than a 50/50 chance of survival. I won’t go through a full recount of the ordeal but it is sufficient to say that it was a difficult time for my entire family. At the time. being just 9 years old, I was old enough to understand how grave the situation was and in turn mature enough to want to learn all I could about the illness and make an attempt to understand what he was going through. I poured through the encyclopedia the night my parents told me (no internet back then!) and the library would be my next stop. I am glad to say that he has been in remission for close to 20 years and is now considered a cured survivor. As we all know, not everyone is so lucky. For close to three years I spent many afternoons and weekends in the pediatric oncology ward. Both my brother, parents and I made friends and lost some as well. It was an experience in my life which surely shaped my character, I believe for the better.

    Cos and I met years ago in nyc and became good friends keeping in contact throughout the past 7 years or so. He has been a dear friend, always there for me with an ear to listen to my constant complaining or to give advice when asked (even when not asked!). When he called to tell me he was heading back to London because of your condition it finally became my turn to offer some advice and I hope a bit of comfort. It was then that we talked about my brother, and I was able to offer him my perspective on the situation. The funniest part is that I recently did a fundraiser for the leukemia and lymphoma society (to which he donated), but must have never actualy READ the email with my story about my brother! I had a good chuckle about that, and surely will not let him live that down.

    I simply want to let you know that you and your family are in our thoughts and prayers. We pray for a successful treatment and a quick recovery. I’ll be watching your blog and progress.

    George Bernard Shaw said, “We are made wise not by the recollection of our past, but by the responsibility for our future.” Reflecting upon our experiences are meaningless if we don’t allow these experiences to positively effect our future. Keep positive. Keep healthy. You will fight, and you will prevail. I look forward to meeting you and the rest of your family one of these days.

    B.

    • #2 by funhousediary on January 16, 2011 - 7:28 am

      Hi Brian

      Thanks for the words of encouragement. ALL is more common in children, and I am glad to hear that your brother is cured.

      Yes, Cosmas has been really great. He’s helped us a lot as well, not just with the logistics and what nots, but with advice about dealing with work and others. He’s the one we told first, and he broke the news to the rest of the family. Not a good position to be in; bearer of bad news on Christmas Day.

      I’m taking things one day at a time, and trying to be as positive as I can. I am confident that I will beat this thing. And the support of people like yourself (whom I’ve never even met, but will look to address when I am better) and Michael (and his mother) will give me even more resolve to beat this thing.

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